The right to die

She can be like a storm, today she is a strong and raging storm. The strength is inner fortitude, the rage is anger. The characteristics unleashed today as a perfect storm have brewed a lifetime.

She’s angry and raining down tears. She want’s to die, she’s had enough. She has been in hospital for 7 weeks. The operation was this week, she feels worse than before, the patient has lost patience…

Dark clouds circle and our non-linear conversations span hours.

It was a success, says the doctor.
She says “I can’t bear it any more.”

“Tell me one thing that’s good about me…”
I tell her ten.

“Get a nurse ask them to give me something, please help me end it.”
The nurse can’t do that, it’s illegal.

“It can’t be illegal, please tell the nurse.”
A nurse comes, not on her shift she explains. That isn’t why she studied nursing she claims.

“You wouldn’t do this to your dog. You wouldn’t keep Shortie alive, you wouldn’t do this to Shortie…”
I wouldn’t, and I plan to make sound decisions for Shortie’s end of life when I need to. My Vet, her doctor, will support my choice.

“I have nothing to live for”
I tell her I love her.

If you love me, do this one thing for me. Go upstairs and tell the doctors I can’t bear this anymore.”
No.

“Please ask the doctor, I don’t want to live like this. I can’t.You have to do this for me.”

Three doctors came by and try to placate her. They named her state ‘delirium’. One doctor told her she is much better. “No I’m not” she wept. He told her that’s because she can’t remember how sick she was before. The doctor’s left.
She was not calmed.

Hours pass and her anger doesn’t subside. She is distressed, she hasn’t planned her funeral, she’s not prepared. We plan it together. No flowers, no music (really, not a note of a threnody – I couldn’t convince her), no church, a simple casket. Cremation.

I promise.

She’s ill and apparently gripped by delirium. For days, she rages, argues, begs, entreats. I would say she was beside herself, only it was more like she was inside herself.

She is despairing, her frustration with her illness and the medical system manifests as helplessness and is expressed as anger.

Gradually the storm subsides and she stops speaking of dying. I buy her cakes, tiny petit fours, sweet things to enjoy. Normalcy reinstated, we talk of cabbages and kings. Looking through the window, we marvel at the sunshine occasionally breaking through the clouds.

The doctor had said she was delirious, was it the subject matter? Do we need to be delirious to speak of dying, to not want to live beyond an existence that can be enjoyed?

Voluntary euthanasia and assisted suicide are illegal in Australia, no-one can be helped to die. Life itself is a fatal condition, and untreatable. I want to be permitted and trusted to make an informed choice. To say ‘when’ for me and for those few who who trust me with Medical Power of Attorney. I already make those decisions for some I love best.

I do want the choice to be within my power, to die quietly with medical assistance, when it is my time.

Crossing me

You get to the edge of who you are and there’s no going back you have to cross.

Cross with care or cross with abandon.

My experiences shape who I am, and recent experiences, the ones I write about, have certainly taken me beyond what I had imagined was me and what I would have regarded as my limits. I have crossed edges, boundaries, and borders.

I could label my experiences as personal development but that makes travelling my course sound self directed. I’ve wandered without a destination in mind, and although I would like to boast otherwise, I must quietly admit that I’ve presented my id or passport, with trepidation more often than boldly.

It’s also true that I could never quite have cracked up and quit, not even when I sat listening to the fridge. I did what I was able to and gently pushed at the edges, redefining me as I went. It’s ongoing work.

Somewhat paradoxically, there is less control and more abandon in who I am now. I’m not without fear, any solo traveller will appreciate there are inevitable moments of self doubt and cross and I grow.

I live a beautiful life, I know that when I can smile to myself on a morning tram packed with commuters, and I swear not much smiling happens on those journeys. Then there’s the almost boundless joy of taking a deep breath of dog, or those moments when I clumsily hug someone who’s not expecting to be hugged, I make it all up as I go along.

I don’t know how it all happened, how I got to where I am. I am thankful to have crossed me and kept on growing. I lost Mottsu and I managed to find the best of me.
I don’t know how that happened.

Destiny…

A little after Mottsu died, someone put me in touch with Sally; a woman in similar situation to mine. We met, we had a lot in common. Sally described the suicide of her husband, there were disquieting similarities in the lead up to our losses and in our experiences afterwards.

Sally warned me that the second year was harder than the first, that was news I didn’t need to know. The other thing she told me that I didn’t want to know was that there is an increased risk of suicide among people touched by suicide. I think Sally said the risk of dying by suicide was double for me than others. Was it prophecy?

She didn’t know she was talking to someone as coerced by suggestion and believing in destiny as I am. Being told I was at risk was an unwelcome omen. I remember the nun’s at schools telling a class of girls that some of us would receive a call to become a nun. They said it was important we not deny that calling if we heard it. I used to pray “Dear God, please don’t pick me, don’t call me, please don’t, please don’t… Our Father not me…. Angel of of God, my guardian dear – not me – not me…”. I still worry I might have ignored a calling. If it was there I denied it. I denied Sally’s forecast too.

I have tried to look up the suicide risk of grievers of suicide. There’s no data, only estimates, and apparently the likelihood of suicide after you have lost someone close to suicide is estimated as up to 5 times that of the population at large. I think that is still a very small number, a tiny risk.

There was no denying that suicide might have been easier for me than for others, just my familiarity with it would have increased the risk. Damn lies and statistics.

Whatever Sally could foretell, suicide is not for me.

What would lead you to not crack up and quit?

It was 21 May 2006, I was returning to Melbourne after the City to Casino run, flight QF1012 and sitting in 4C. I still have the boarding pass it has been preserved between the pages of the book I read on that flight.

Joseph Campbell’s Pathways to Bliss: Mythology and Personal Transformation.

“You might ask yourself the question: if I were confronted with a situation of total disaster, if everything I loved and thought I lived for were devastated, what would I live for? If I were to come home and find my family murdered, my house burned up, or my career wiped out by some disaster or another, what would sustain me? We read about these thing every day and we think, well that only happens to other people. But what if it happened to me? What would lead me to know that I could go on living and not just crack up and quit?

…In our day, however, there is great confusion. We’re thrown back on ourselves and we have to find that thing which, in truth, works for us as individuals. Now how does one do this?” (p. 88)

There are some big questions asked in that passage. I was finding my feet, clad in running shoes. I was up and running, my direction was not so clear, but becoming clearer. There was no set destination. Importantly/amazingly/defiantly I had gone on living, I hadn’t cracked up and quit, it had almost happened while on auto-pilot, without thinking about what next…

I did sit around for a while hoping to be wakened from a nightmare, or to be rescued. That evening Campbell’s words resonated, I realised the importance of finding what worked for me as an individual. It was two years and two months since Mottsu’s death, that’s how long it took before starting to emerge from mourning.

That was me, it will be different for you.

A high functioning zombie

define aliveDetectives investigating the disappearance of a Melbourne businessman are reportedly confident that he is still alive.

Define alive, detectives.

When Mottsu was missing I never felt confident that he was alive. Perhaps dragged down by depression, he hadn’t been truly alive for a while before he left. Alive could be a matter of definition.

On his last day Mottsu said “I think there is something wrong with me, I can’t feel anything”. I’ve said the he said the statement, it was more of a wail, a dull monotonic lament.

I heard his words and the earth stopped spinning on its axis, for a long time I didn’t hear either of us breathe. If ever there was a moment in which to slip into to another reality it was then, a black hole…

Gasping for air, wanting to live and grasping, I clutched his hand then strengthened my hold to full wordless embrace, my last ditch attempt to resuscitate him.