Crushing lows, sadness and hopelessness

An article from the Vancouver Sun about Margaret Trudeau, the wife of the former Canadian Prime Minister Pierre Trudeau. The story tells of her ups and down with bipolar depression*

I am struck by this episode described in the on-line news and taken from her book Changing My Mind On a terrible evening of misery and rage I attacked a quilt by Joyce Wieland, a piece of art … that Pierre particularly loved…Stitched on the front, neatly and smugly (it seemed to me then) were his favourite words: “Reason over Passion.” Margaret apparently chopped out the words with scissors, rearranging them to read “Passion over Reason.

If there’s a polarity, passion on one side and reason on the other, it seems a shame to deny one by choosing the other. Is that how it is?

Reading the short on-line newspaper version of Margaret Trudeau’s story is interesting and terrifying with her highs and lows. The article says that, “She’s willing to tell the stories in order to also have the opportunity to say this: That the mind is a wonderful, powerful and destructive thing. And that you can change your mind.”

Hmm an interesting twist, to think that, your mind can change you and you can change your mind. how to be mindful, and keep a beginner’s mind, minding and not minding. My thoughts on a weekend with the the weekend papers on-line.

*What I referred to as ‘bipolar depression’ is commonly referred to as ‘bipolar disorder’, I struggle with the classification of ones way of being labelled as a disorder. Maybe bipolar depression is something else entirely and I should just say ‘bipolar being’.

To Write Love on Her Arms

I was not taken by World Suicide Prevention Day, and there is another movement I’d like to mention: To Write Love on Her Arms

To Write Love on Her Arms is a non-profit movement dedicated to presenting hope and finding help for people struggling with depression, addiction, self-injury and suicide. TWLOHA exists to encourage, inform, inspire and also to invest directly into treatment and recovery.

Their vision, they say, is that they actually believe those things, and that they hope we love ourselves enough to get the help we need. Non-judgemental, I say (while trying not to judge but to appreciate).

Your story is important.

Your life matters.

Your best days are ahead.

Recovery is possible.

Simple messages, informative and loving. TWLoHA reassure me that help is possible. Help is something that’s available for you rather than being done to you, or help being imposed on you. It’s important that help can be reached rather than help needing to ride in, scoop you up, and rescue you. I may be oversimplifying very difficult situations that we can find ourselves in, and the premise of TWLoHA makes sense to me. TWLoHA seems not to victimise, or diminish anyone trying to find hope, but supports that search.

A loving supportive approach to say you are not alone (not if you deep down don’t want to be).

What does it matter whether they believe you or not

“If I’d been able to kill myself and afterward see their faces, then yes, it would have been worth it. People aren’t convinced of your sincerity, your motives, and the depth of your sorrows except by your death. As you long as you are alive, your case is uncertain, and you are entitled only to their skepticism. So if one were sure to enjoy the spectacle, it would be worth it to prove to them what they don’t wish to believe, and to astonish them.

But you kill yourself and what does it matter whether they believe you or not: you aren’t there to drink in their amazement and their contrition (so fleeting, moreover), to attend, as every man dreams, your own funeral.”

Albert Camus, The Fall (1956)

Gradually and then suddenly

As I think about World Suicide Prevention Day, it’s in a fortnight, I can’t help but wonder how effective that initiative will or won’t be, and I’m drawn to recall Elizabeth Wurtzel’s dark and compelling work, her experience of depression. The World suicide Prevention Day site is rudely smiley and brightly coloured, it almost chuckles at me. The site irks me, as does the notion of a prevention day. Why link something that can’t always be conquered in weeks, months or even years with ‘a day’. Isn’t that a bit of whack for those who can be gripped with depression for endless periods? The notion of WSPD is all out of kilter, to prevent suicide wouldn’t we need to address depression first? I do acknowledge that depression is not the only cause of suicide but the major one.

Elizabeth Wurtzel doesn’t pin down a cause of depression, what she does is describe the burden, it’s overarching breadth and seemingly bottomless depth of the affliction. I believe understanding depression and people afflicted by depression, people Wurtzel describes as the walking waking dead, a greater priority than suicide prevention. To me, prevention is not a position to start from, it sets up an adversarial (helping?) relationship between preventer and the suicidal. Ready for battle? Building understanding is my preference.

This is one of Elizabeth Wurtzel’s descriptions of what depression can look like from the inside:

“… Depression is a lot like that: Slowly, over the years, the data will accumulate in your heart and mind, a computer program for total negativity will build into your system, making life feel more and more unbearable. But you won’t even notice it coming on, thinking that it is somehow normal, something about getting older, about turning eight or turning twelve or turning fifteen, and then one day you realize that your entire life is just awful, not worth living, a horror and a black blot on the white terrain of human existence. One morning you wake up afraid you are going to live.

In my case, I was not frightened in the least bit at the thought that I might live because I was certain, quite certain, that I was already dead. The actual dying part, the withering away of my physical body, was a mere formality. My spirit, my emotional being, whatever you want to call all that inner turmoil that has nothing to do with physical existence, were long gone, dead and gone, and only a mass of the most fucking god-awful excruciating pain like a pair of boiling hot tongs clamped tight around my spine and pressing on all my nerves was left in its wake.

That’s the thing I want to make clear about depression: It’s got nothing at all to do with life. In the course of life, there is sadness and pain and sorrow, all of which, in their right time and season, are normal — unpleasant, but normal. Depression is an altogether different zone because it involves a complete absence: absence of affect, absence of feeling, absence of response, absence of interest. The pain you feel in the course of a major clinical depression is an attempt on nature’s part (nature, after all, abhors a vacuum) to fill up the empty space. But for all intents and purposes, the deeply depressed are just the walking, waking dead.

And the scariest part is that if you ask anyone in the throes of depression how he got there, to pin down the turning point, he’ll never know. There is a classic moment in The Sun Also Rises when someone asks Mike Campbell how he went bankrupt, and all he can say in response is, ‘Gradually and then suddenly.’ When someone asks how I lost my mind, that is all I can say too.”

Prozac Nation: Young and Depressed in America: A Memoir, Elizabeth Wurtzel

A dear friend told me the same thing, gradually and then suddenly, that was her experience. In retrospect I can see the same in Mottsu and how he lived and left, it helps me to know that. That simple statement does more to encourage understanding and support depression than any number of world-wide prevention days.

Hope and resilience in photographs

The Black Dog Institute is a not-for-profit, educational, research, clinical and community-oriented facility offering specialist expertise in depression and bipolar disorder.

The entries have been judged for Snapping the Black Dog: A Photographic Competition about Hope and Resilience in the Fight against Depression.

Wonderful poignant images that capture the essence of both hope and resilience. Apart from the photography competition the site provides information, explanations and links to support resources.

Its a fabulous resource where more can be learned about depression and bi-polar disorder, including fact and information sheets that can be downloaded.

Keep on swimming, just keep swimming

In the Australian election suicide prevention has been identified as a priority. I can’t help but wonder if the investment wouldn’t be better made in supporting or developing mental resilience than preventing suicide. Earlier support rather than later I mean.

I am indebted to journalist Susan Maushart for talking about the drowned rat study of 1957. Resilience or determination was developed in rats or maybe it was just hope.

Rats that were trained to hope swam, while locked in jars filled with water, for 60 or more hours. Inexperienced, or un-hopeful, rats would sometime persevere for as little as 15 minutes before giving up and drowning. It’s a horrifying and compelling study.

Why did some keep on swimming in a Nemo-esque fashion while others chose to give up? Hope?

I hope our government invests in ways to build hope in addition to rescuing the drowning. Both are needed but one has more power, and allows for greater self determination. For now keep on swimming, just keep swimming Nemo.

Hold on to hope.

Huddled like a sick ape in the back of my mind

Since reading this passage I can’t shake the image of the sick ape…

“It was absolutely uncanny, gave me the creeps. That woman actually thought I’d been thinking of suicide.

I had been thinking of it right enough, often do, always have the idea of it huddled like a sick ape in the back of my mind. But I’d never do it. Well, that’s not true either. I can imagine the state of mind, I’ve been in it often enough. no place for the self to sit down and catch its breath. Just being hurried, hurried out of existence. When I feel like that even such a thing as posting a letter or going to the laundrette wears me out. The mind moves ahead of every action making me tired in advance of what I do. Even a thing as simple as changing trains in the Underground becomes terribly heavy…”

Hoban, R. (1975) Turtle Diary p. 75. London: Bloomsbury Publishing

Oh, thanks Russell Hoban, finally I can feel how suicidal thoughts reside in one’s head, quietly omnipresent and huddled. Oh my, Hoban’s description of ‘it’ is haunting.

I am reminded of Mottsu’s lethargy, how he was weighed down by his depression and how he barely plodded through his last days. I didn’t quite see it then but now, with 20/20 hindsight; I can see how he struggled and he did not (could not) find the space to sit down and catch his breath.

Having said that I will also say that help is at hand. Around the world there are services dedicated to supporting people keep living. In Australia those seeking support and information about suicide prevention can contact Lifeline on 13 11 14

Depression is…

For a lucky some of us, depression is difficult to fathom as a potentially fatal affliction. For others is an omnipresent shadow, that is difficult to explain and impossible to share.

“For me, depression is kind of like the Jimi Hendrix experience without the Jimi Hendrix. It’s the big black hole at the end of the universe, and it’s sucking all the colour and majesty out of life like a late-night ShamWow commercial. All the happiness there ever was and all the joy that will ever be; all the smiles you ever saw and all the light you’ll ever see – flushed like a dead goldfish down a rusty drain pipe.”

Richard Parker writes with eloquence about depression from the inside.
http://www.abc.net.au/unleashed/stories/s2942107.htm

When you see the rest of your life coming towards you

“My father did, I think. Commit suicide.

Although they called it an accident.

His car went over a cliff into the sea.

On to some rocks that you can see at low tide but not high water.

No collision, no skid marks or anything.

My mother kept the newspaper cutting, I still have it somewhere.

Who knows what might have appeared in the road coming towards him.

The rest of his life maybe.”

Hoban, R. (1975) Turtle Diary p. 76. London: Bloomsbury Publishing

Read Russell Hoban, he is an author to read. His words are touching, at times he tells the story from right inside your head. His words grab me, I sit on the tram with Turtle Diary on my lap and eyes moist, early in the morning. I try not to glimpse my life down the road, and can imagine my reaction if I were to see it. What are we living for?

“My despair has long since been ground up fine and is no more than the daily salt and pepper of my life.” same book, same tram journey, same moist eyes and me sighing.

With his words Hoban reaches into my chest grips my heart, twists and squeezes. I gasp for air, relieved. That’s what I live for, the experience of breathing.

Living and breathing.

Un-slumping yourself is not easily done

“I’m sorry to say so but, sadly, it’s true that Bang-ups and Hang-ups can happen to you.

You can get all hung up in a prickle-ly perch.

And your gang will fly on.

You’ll be left in a Lurch.

You’ll come down from the Lurch with an unpleasant bump.

And the chances are, then, that you’ll be in a Slump.

And when you’re in a Slump, you’re not in for much fun. Un-slumping yourself is not easily done.”

Oh! The Places You’ll Go!
Dr. Seuss